Week 9 of Pregnancy: Top Secret

Week 9 of Pregnancy: Top Secret

(Entry written prior to posted date)

Date written: 9/3/19

 

PLEASE READ FIRST: Although this pregnancy ended in a miscarriage, I still wanted to share my experience of this pregnancy. I wasn’t ready to talk about my pregnancy as it was happening, so I wrote this entry prior to the date it is posted.

 

I’ve decided this pregnancy needs to stay a secret from pretty much everyone until I at least pass my first trimester. This is proving to be difficult while I continue to write posts about other things going on simultaneously. For example, while I was waiting to get tested for the MTHFR gene mutation and when I got my results what I didn’t tell you all is that I was mostly there for testing my HCG levels because I was pregnant. Sneaky, sneaky. I so wanted to share the news because I was so happy but I ultimately chose to wait because I wanted to not deal with the questions I would get. I tend to be OCD at times and I overly research the s**t out of things enough as it is with this pregnancy, almost to the point of neurosis. So I really didn’t want to have the added stress of other people’s questions and worries on top of my own. For this pregnancy it was more of a strategic stress management decision. I wanted to reduce my stress as much as possible. I’ve decided to keep this news to myself until I feel comfortable to share it, which in all honestly will probably be sometime during my second trimester.

 

I just got off the phone with the office of my geneticist. My OBGYN doctor referred me there since I was found to be positive for the MTHFR gene mutation. So my geneticist’s office has been playing phone tag with my OBGYN office and apparently didn’t have a clue why I was referred to them. So I had to explain to them that I was pregnant, had the MTHFR gene mutation and needed to find out ASAP whether I should be taking Lovenox or not. So I’m still waiting to hear back. My OBGYN didn’t seem too sure whether I should be taking a Baby Asprin or not, so I decided to continue taking it since I’ve read that it probably wouldn’t do any harm if I took it but didn’t need it. 

 

As far as how I’m feeling, well imagine that every ounce of life has been zapped from your body and that’s pretty much what I’m feeling. I have zero energy, and I mean zero. It takes a decent amount of energy just to get up and get something to eat. I’ve been parked in front of the TV so much my body aches until I force myself up and stretch while I reach for a small snack. I’ve been eating like a bird, very small amounts but frequently. I’m eating frequently because my nausea has been absolutely terrible and the only thing to keep it at bay is to have a little snack in my stomach. I don’t eat full meals much, and if I do it takes me forever to eat it all. I definitely have morning sickness when I wake up. Needless to say Saltine crackers have become my new best friend. We bought a Costco sized box of twelve sleeves of crackers which will probably last me just a couple weeks. 

 

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Positive Pregnancy test on July 26th.

 

A couple years back I was eating a snack at work and my coworker’s face lit up and she said, “Oh my God! You’re pregnant!” I was so confused how the comment came seemingly out of nowhere. “Uh, no, just hungry. I haven’t eaten yet today” I said. She pointed to my snack as if I should have known I was pregnant just based on what I was eating. I was so confused and asked her why she thought I was pregnant. She explained that I must have been because I was eating Saltine crackers and that no one eats Saltine crackers unless they are pregnant. I explained to her that I like salty snacks and that I figured it was better than potato chips. It took a while to convince her that I was not pregnant. Knowing that some people so strongly associate these crackers with pregnancy is going to be a problem for me while I try to keep my current pregnancy under wraps. They are the only thing keeping me from being barfy. Granted I no longer work with that person, but I am a terrible liar and need to figure out how to maneuver around this possible question. Mamma needs her Saltines! 

 

As far as emotionally, I’m excited that this pregnancy has been going well so far. I’ve had no problems at all other than some random sharp pains. But my baby’s heart is beating well and it’s measuring perfectly on track with the ultrasound. Kurtis had to work that day so I’m hoping he and I will be able to actually see the heartbeat the next time we are there. And maybe we can actually make out some body parts instead of it appearing like a blob where it’s hard to even tell where the head is. I’m counting down the days. We are doing the appointment and ultrasound on Friday the 13th. I hadn’t really thought that one out, but I figure with the terrible luck I’ve had in the past maybe I should play the “opposite game” and stick with that appointment date. Maybe our little one will be just as healthy and strong as it was with the first ultrasound but bigger. 

 

I’ve been using the Ovia Pregnancy app on my phone. I love that app because it gives an adorable cartoon rendition of what the baby looks like at each week of the pregnancy. It also tells you what size the baby is, mostly in fruit, but this week my baby is the size of a southern pecan according to the app. It even shows you the actual size of the baby’s hand which really adds to the cuteness factor and will make anyone go “awww.” 

 

As much as I want to be in the moment I also really want this first trimester to fly by, so I can feel some sense of security knowing the miscarriage risk is lower. I know you can lose a baby at any point during the pregnancy. But to get past the first trimester would be amazing and surreal, because I’ve had that chance. Even now, when I think about how this time next year I could be cuddling with my baby, it seems very surreal. The best way I can describe it is when you have such a strong dream in your heart, but you’re told it will never happen, and then way later down the road it suddenly becomes a possibility. It’s hard to fully embrace that reality when you feel like it can be ripped out from under you at any point. But I still carry on and try to stay optimistic.

 

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MTHFR Gene Mutation Test Results

MTHFR Gene Mutation Test Results

Today’s post will make more sense if you read my last one. So rather than recap everything again that lead up to these results you can go ahead and read that one by clicking here. I may have called the clinic three times to ask about my results over this last week. No one seemed to have a time frame for me of when to expect the results and they said, “This test takes a little longer.” 

 

Finally my doctor called when I was in a Wendy’s drive through with my Mom who was driving, I was visiting her that day. I had my phone up to my one ear, and my finger in the other ear trying to block out all the unusually happy workers inside who were all laughing hysterically about something for what seemed like five minutes straight while I was on the phone trying to hear what he was saying.

 

“You tested positive for the MTHFR gene mutation,” he said. He went on to explain some details that I wasn’t able to grasp in the moment, probably due to a combination of not hearing him and not actually processing all the info. I had to call him back later to actually write down what he was trying to explain to me. He said I have the “MTHFR gene mutation C677T heterozygous single version.” He thinks that some of my miscarriages may have been caused by this gene mutation. Essentially, when you have a MTHFR gene mutation your body cannot process folate well, which is an incredibly important vitamin that helps the baby grow properly. 

 

I had very conflicting emotions with this news, mostly a combination of anger and relief. I was so angry that none of the doctors had realized this earlier, and that one doctor mistakenly told me that I was negative for this gene mutation when she really meant to say I was negative for Factor Five. So I went on to tell my next doctor and several other medical teams I was working with that I did not have MTHFR, going off what she had told me. Sadly, none of these doctors thoroughly looked into my file. Had they done so I may not have had to deal with 2.5 years of five miscarriages and paying for IVF. 

 

I’ve heard stories of women who’ve suffered through many miscarriages before their doctor tested them for MTHFR gene mutation. When they discovered they had it, they were put on the proper medication and vitamins and boom…they have a healthy baby in their arms. I pray it will be that simple for me as well, but I also have Low Ovarian Reserve so it probably won’t be that easy. On the other spectrum of my emotions, I am feeling so much relief knowing that a huge missing puzzle piece has finally been found. But to be honest it is going to take a while to get over my anger. I think in time I will get over it, but right now it is pretty difficult.

 

I sat at Mom’s dinner table and talked about the news with her. She was the one that had mentioned to me several months back my Aunt has the MTHFR gene mutation. This perked my ears up because I remember hearing that acronym as part of the fertility tests I thought I took early on. I explained to Mom, “Had you not told me that, I would not have double checked that I actually got tested for it.” Mom got kind of teary eyed and said something to the effect of, “I didn’t even realize that was something related to fertility.” In other words, Mom had no clue the wheels she had set in motion for me. But I’m glad that she did. I’m also glad that my Aunt spoke up about her medical issues that were caused by the MTHFR gene mutation. Those conversations led me to my diagnosis that could help with my fertility, and ultimately help me to have much greater odds of having a baby.

 

I am brand new to this diagnosis so I have much to learn about it. I’ll probably do informational posts on it in the future. One thing I mentioned to my Mom is that I learned the MTHFR gene mutation has been correlated to some cases of cancer. So my diagnosis has sparked her curiosity into whether she may have the MTHFR gene mutation as well. She has beat cancer twice already and is the strongest woman I know. She said she would look into testing. It’s kind of surreal to finally have a concrete answer as to why I have recurrent miscarriages, and even more so surreal there may be a simple solution of medicine to help me. My OBGYN referred me to a geneticist that I should be seeing soon. Maybe next year we will finally have our little one.

 

Thank you for reading. 

Catch up on past entries by clicking here for the archives page. 

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Image Credit: Photo by Pixabay from Pexels

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